2024 ANNUAL NEALS MEETING

We are thrilled to announce that the 2024 Annual NEALS Meeting will be held as a HYBRID event October 21-24, 2024 in Clearwater, FL and Online!

In-person registration will be closed once the in-person capacity is reached, and as spaces are filling up quickly, we encourage you to register as soon as possible!

Please note that we will not be able to accommodate onsite registration for this event.

Registration is Open!

2024 Annual NEALS Meeting

Our itinerary will encompass a diverse range of sessions, including a membership and industry partners roundtable, a session spotlighting the NEALS PEACe Committee's goals and projects driven by ALS Research Ambassadors, an engaging Hot Topic in ALS Science Session, and Scientific Symposium.

DETAILED AGENDA NOW AVAILABLE

Each General Session at the Annual NEALS Meeting will be livestreamed for those joining remotely.

Information on how to join the livestreamed sessions will be distributed to virtual attendees prior to the event.

NEALS Member Trainings

NEALS Members joining virtually will have the option to livestream select trainings.
Trainings will also be recorded and save in our NEALS Member Portal.

Site Management Training

The Site Management course will focus on site management methods, including topics related to feasibility, study start-up and activation, recruitment and retention strategies, informed consent form process, ensuring Good Clinical Practice (GCP), Institutional Review Board (IRB) submissions, utilizing the electronic Regulatory Document System (RegDocs), addressing staffing needs, and/or preparation for monitoring visits.

Outcome Measures Training

The Outcome Measures training is for new and experienced NEALS Clinical Trial Evaluators. The session will focus on training for the core outcomes measures: ALSFRS-R (ALS Functional Rating Scale, Revised), vital capacity, and muscle strength using handheld dynamometry. Attendance at this session will fulfill training requirements for new and re-certifying evaluators. Updates to outcome measure protocols, as well as hands-on practice and technique checks will be part of this training.

EAP Training

The EAP Training session is specifically designed for NEALS clinicans and researchers to review Expanded Access Programs, show how they differ from other pathways through which patients can access experimental treatments, highlight some challenges, and review steps, resources, and tips for helping study teams launch these at their sites.

Member Trainings

NEALS Member Committee Meetings